society

Vasculitis Fatigue

Reading Time: 3 minutes

Fatigue is severe physical, mental & emotional exhaustion. Fatigue is unfortunately something people with Vasculitis, which includes me, experiences. Fatigue can be present whether or not a person’s vasculitis is in remission or an active flare up.

Vasculitis is also a progressive disease, meaning that meaning that it gets worse as time progressive, although progression can be slowed down with medical treatments.

Recently, I’ve been off work for 3 weeks due to sickness, caused by a Vasculitis flare up and the increased fatigue that it has caused. There have been days that I have slept for 18 hours. It has made me recognise how limited my energy, motivation and time is.

In Finding Your Happiness, I explain that energy using The ‘Spoons’ Theory:

The ‘Spoons’ Theory by Christine Miserandino

Your energy and motivation are limited resources. A good metaphor for explaining this concept is The ‘Spoons’ Theory by Christine Miserandino. Each spoon below is one unit of your daily energy.

Your energy and motivation are limited resources. A good metaphor for explaining this concept is The ‘Spoons’ Theory by Christine Miserandino. Each spoon below is one unit of your daily energy.

Each activity that you complete in a day costs you one or more spoons, depending on the effort, energy and motivation it requires. To explain this metaphor, let’s imagine that every activity takes one spoon. You wake up at the start of your day with 12 spoons. Here’s how you use your spoons:

  1. You wake up.
  2. You wash your face.
  3. You make breakfast.
  4. You eat your breakfast.
  5. You get dressed.
  6. You brush your teeth.

At this point you have already used half of your spoons and you’ve not even made it through the morning yet.

    1. You get ready for work.
    2. You travel to work.
    3. You work.
    4. You travel home.
    5. You make tea.
    6. You have a bath.

    Now you have run out of spoons. You have two options: You can go to bed and rest, which will give you more spoons. Or you can decide to borrow spoons from tomorrow.

    Due to the demands in life, you may opt to borrow spoons from tomorrow. But then you risk getting trapped in a cycle of constantly borrowing spoons from tomorrow.

    As the days pass and you borrow more and more spoons, you’ll reach a point where there aren’t any left to borrow from tomorrow. You’ll be exhausted and burnt out.

    The Spoon Theory has been adopted by people who are neurodiverse and people with chronic illnesses. But it can actually be applied to all. You. Me. Everyone we know.

    (From: Finding Your Happiness by Antony Simpson)

    I have had to accept my number of spoons is significantly less than other people. I went back to work this week, doing a shorter work week (4 days, rather than 5 days) and by Friday I felt exhausted. Working this number of hours, with the energy that it takes is unsustainable for me in the long term.

    I have worked since being 15 years old. I was brought up that it is not just good for me to work, but also is how I contribute to others in society. However, there are other ways to contribute.

    So right now, I’m thinking about what my plans for my future are and dealing with the emotions associated with the fact that working full time is completely unsustainable for me.

    Blog soon,

    Antony

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    Is the Social Contract in the UK Broken?

    Reading Time: 5 minutes

    A social contract is an implied agreement between The Government / Members of Parliament (MPs) / Institutions and The People. Both sides of the agreement have rights, responsibilities and expectations. But is the social contract in the UK broken?

    To answer this question, we need to discuss the expectations of each of the group’s people:

    The People are Expected to:

    • Work and/or contribute to society in other ways.
    • Pay taxes.
    • Abide by the law.
    • To be treated with dignity, fairness, equality & respect.
    • To treat others with dignity, fairness, equality & respect.
    • To exercise their rights to vote, petition and protest, if they choose to do so.

    The Government / MPs / Institutions are Expected to:

    • To keep citizens (The People) safe – usually achieved through the Military and the Police.
    • To ensure all of The People have access to shelter (housing), food, water and appropriate clothing. To ensure that these basic survival needs are affordable.
    • To ensure of of The People have access to the NHS, safe and high quality healthcare. This ensures that the majority of the population are in good health.
    • To ensure that children / young people and vulnerable adults have access to Social Care services that keep them safe and support them.
    • To ensure all of The People have opportunities to learn through education establishments, libraries and apprenticeships. This develops a knowledgeable and skilled workforce for all of society.
    • To be financially responsible, ensuring the economy grows and benefits all. This includes ensuring employment opportunities for working-age people, ensuring pension schemes for the elderly and Welfare (benefit payments for: people on low wages, unemployed people, people who need extra support due illness or disability, support for families with children and support towards the cost of housing).
    • To develop, support, maintain and ensure accessibility for all of The People to key infrastructure such as water sanitation, waste disposal/recycling, energy/power systems, roads/public transportation and telephone / communication systems.
    • To create new laws for the good of The People.
    • To ensure that there is a system for individual people that brake laws, which includes both justice / consequences and rehabilitation. In the UK, this is through the Police, the Courts, Prisons and Probation services.
    • To ensure that all institutions adhere to Human Rights, are accessible and don’t discriminate or harass any of The People.
    • In Parliament, to represent and act in the best interests of both The People in the communities that elected them and the larger UK society.
    • To promote good diplomatic relationships globally and to advocate for / encourage peace.

    I understand that the The Government / MPs / Institutions have a large number of complex expectations to meet. However, in the last few decades, it feels like on every single one of these expectations The Government / MPs / Institutions are failing to deliver. Not only are they failing to meet expectations right now, but it also appears that they are setting society up for further failures in the future.

    In the last few decades, The Government / MPs / Intuitions have appeared to work for a select group of people within The People: the wealthy elite (see rising wealth inequality).

    My opinion is that everything is broken. The social contract is broken, politics is broken, all public services are broken. It feels likes society in the UK is disintegrating right in front of my eyes.

    This week Andy Burnham won the by-election in Ashton-In-Makerfield, Wigan. At one time, this would of given me hope. Andy Burnham is an experienced politician and to give credit where it is due, he was the Health Minister when I started my career as a Student Nurse.

    Back in 2004 – The Labour Party’s bursey for Nurses scheme enabled me to go to University to become a Nurse. I was the first person in my family to go to University. The policy documents, ideas and follow through actions whilst Andy Burnham was Health Minister were good.

    One basic but excellent idea I remember for the NHS, is calculating how many Nurses the NHS would need in the next 3 years. They then doubled the number of training places to ensuring we had enough Nurses qualifying at the right time.

    I do have reasons not to hope for too much, or put my complete faith and trust in Andy Burnham as a Prime Minister though.

    Before I list these, I want to say that what I’ve heard so far from Andy Burnham seems promising. Bringing back public transport, utilities and energy into Government ownership would not only go along way to addressing the cost of living crisis, but would also ensure the Government’s wealth security for future generations.

    My reasons for not putting too much hope, faith or trust in Andy Burnham include:

    1. Josh Simons was the former MP for Ashton-In-Makerfield in Wigan. Josh appeared to well respected and liked locally, but suddenly gave up his seat to make way for Andy Burnham. This makes it feel like political game playing and acting in self-interest, rather than in the interests of The People. I am almost expecting that Josh Simons will get a peerage to the unelected House of Lords. Not because he earned it, not because The People will benefit, but because Andy Burnham promised him, in return for giving up his elected seat.
    2. It is rumoured that the proposed Clean Air Zone (CAZ) was Andy Burnham’s idea when he was Mayor of Greater Manchester. I should make clear that Andy Burnham now denies this, stating that it was the previous Conservative Government’s idea. But this doesn’t ring true for me. Before the CAZ, there was a proposal for a Congestion Charge for Greater Manchester. This would have reduced traffic, as only people with the money could afford to drive into the city centre. However the majority of The People in Greater Manchester voted to reject the idea of a congestion charge. The CAZ to me feels like another way Andy Burnham tried to implement this idea. It also doesn’t feel right that The Conservative Party would bring in a charge for motorists for ‘clean air’ or that they would want it to cover the whole of Greater Manchester.
    3. Another rumour relating to the proposed CAZ was that either a company that Andy Burnham’s wife owns or works for got paid £100m for all of the signage. I have never read anywhere that Andy Burnham has acknowledged this rumour or responded to it. Sometimes, silence from politicians makes me feel that they are covering their back, not saying anything to avoid incriminating themselves. If Andy Burnham was involved, influenced or was even aware of his wife’s involvement, this feels like a very real conflict of interests. What was done about this? We don’t know, because the rumour hasn’t been acknowledged, confirmed or denied.
    4. If the Greater Manchester Combined Authority, which the perception is that Andy Burnham was the leader of, did pay £100m for signage, that’s feels like a lot of tax payer’s money that has been wasted for a scheme that never materialised.
    5. Even if Andy Burnham has all the best of intentions and only wants to serve The People, there is a chaotic Labour Party and a whole political system set up that seems pretty happy with the status quo. Can Andy Burnham have the influence, charisma, ideas, motivation and energy to make the transformational change required?

    I have never wanted for any one to prove my concerns about them wrong as I do about Andy Burnham right now. I want the social contract back. I want a fair and good society.

    If you look at the collapse of every empire in history, they all have one thing in common. They happened (at least in part) because their ruling class (those with power) stopped serving The People and started serving either themselves, the wealthy elite or both.

    What are your thoughts? Leave a comment below.

    Write soon,

    Antony

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    10 Reasons Why Pride Month is Important

    Reading Time: 2 minutes

    Here are 10 reasons why Pride Month is important:

    10. It allows LGBT people to be visible and celebrated as part of society. This is great for young people who are LGBT. It gives them hope and positive role models.

    9. It helps to create safe spaces for LGBT people to be themselves. Without the risk of verbal or physical attack.

    8. It helps bring the community together, as LGBT are a minority group.

    7. It raises money for LGBT people with HIV or who have been made homeless due to being an LGBT person.

    6. It allows businesses, public institutions/organisations and charities the opportunity to show their support to the LGBT community. In the past, some of these organisations may have treated LGBT people appallingly.

    5. It is an opportunity to remember the LGBT people that came before. Those that campaigned for the rights that LGBT people have today.

    4. It is an opportunity to show others that what we all have in common. What brings us together as a society.

    3. It is an opportunity for our straight allies to celebrate with us.

    2. LGBT people still face disproportionately high health issues, such as issues with poor mental health and addictions.

    1. We still haven’t got equality for LGBT people in the UK yet. Never mind globally.

    Want to know more about influential UK gay men?
    Read my free article, Influential UK Gay Men here.

    Write soon,

    Antony

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    Inequality: Making Society as a Whole Poorer

    Reading Time: 2 minutes

    This is the definition of inequality according the Cambridge Dictionary:

    Inequality is a global issue, but is particularly prevalent in the UK. The top 1% of the wealthy own more wealth than ever before.

    There’s some data to suggest that even during COVID their wealth increased four fold. When I’m writing about wealthy people, I’m talking about people with assets or income worth multiple millions or billions of pounds.

    As the wealthy become even more so, driven by greed, the poor and middle income earns get poorer. I mean how many more mansions, private jets and luxury yachts do wealthy people need?

    The only way to reduce the gap between the rich and the poor in a capitalist society is to:

    • Make it impossible for wealthy people to hide their assets globally.
    • Tax the wealthy based on their assets and income.
    • Make sure there are no legislative loop holes that allows wealthy people to avoid their taxes.

    The problem with reducing inequality, is that it can only be done by Governments. Governments both in the UK and internationally are run by the wealthy, seemingly for the wealthy.

    Unchecked inequality inevitably leads to wealthy people owning everything and the poor owning nothing. Think of it as being like a game of Monopoly, eventually a few wealthy people horde all the money, at great cost to the everyone else who become poor.

    So what can we do about it? Not much, unless we are in a position of power.

    Blog soon,

    Antony

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