Last week was the worst of my life. The hole in the roof of my mouth got bigger. It took away my ability to speak and be understood clearly, restricted my diet and fluid intake and made taking medications challenging.
It sent my mood very low. Apart from attending a coupe of medical appointments, I slept. Day and night. That’s all I did. The situation felt overwhelming.
Its taken me a week to figure it out. I’ve been stressing and worrying about things that I have no control over. It reminded of this page in The Alcohol Therapy Workbook:
So I am re-focusing on what I can control: me. My thoughts and behaviours.
I’ve had time to reflect on my recent health consultations (see The ENT Specialists) and I can honestly say that I’m feeling devastated.
I knew the hole in my septum had gotten bigger, but seeing the state of the inside of my nose on a monitor attached to a camera on a flexible cable really traumatised me. I have plenty of health-related worries right now including:
Do I have vasculitis and if so, what does this mean for me in the long term? Vasculitis is a very rare condition.
If its not vasculitis, then what is the cause of this extensive nasal destruction?
What will the biopsies show? Could it be Cancer?
They want to operate urgently in the next two weeks. What is going through the mind of my ENT Consultant?
What has caused a small hole in my septum to lead to complete septum destruction in around 4 months?
Will the pain ever be resolved? Or is this it now? Chronic long term pain.
Could other symptoms such as fatigue, a psoriasis-like rash on my elbows, difficulty standing for short periods, right hip/knee pain and difficulty sleeping through the night (insomnia) be related to my nasal passage problems?
How will they decide to fix the problem? Is it even fixable?
How will all this impact on the management of my type 1 diabetes?
What other autoimmune diseases does this increase my risk of getting?
How will any or all of the above affect my life expectancy?
What does all this mean for returning to work and life?
Will I ever feel normal again, or is this the new normal?
Why did nobody ever tell me to go and get my constant blocked nose checked out? Would it have made any difference?
Why didn’t I get any ENT experience as a Student Nurse or in A&E. This would have at least given me some clinical experience in the area?
Why did I decide that my constant blocked nose was because of developing an allergy to my two gorgeous cats?
Will I ever be able to smell normally again? At the moment, I can’t usually smell anything, unless I try and it is particularly strong. Sometimes, I smell what smells like rotting flesh.
Why is the waiting list so long to seen ENT? Ear, nose and throat systems are vital to health and wellbeing.
And more questions continue to fill my head on an hourly basis.
I have plenty of questions right now, but not a lot of answers. It’s the not knowing that causes the most anxiety.
During my working and personal life I have met people who have told me that they are on the autistic spectrum or have been diagnosed with Asperger’s syndrome. But I’ll be honest, I don’t know that much about autism or Asperger’s syndrome.
So I’m writing this Autism & Asperger’s Syndrome Series to educate myself and others.
What is Autism?
Autism spectrum disorder (ASD) is the name for a range of similar conditions, including Asperger syndrome, that affect a person’s social interaction, communication, interests and behaviour.
In children with ASD, the symptoms are present before three years of age, although a diagnosis can sometimes be made after the age of three.
It’s estimated that about 1 in every 100 people in the UK has ASD. More boys are diagnosed with the condition than girls.
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What is Asperger’s Syndrome?
Asperger’s Syndrome is a Pervasive Developmental Disorder that falls within the autistic spectrum. It is a life-long condition, which affects about 1 in 200 people, more commonly in men than women. Those with Asperger’s Syndrome are usually of average or above average intelligence.
The condition is characterised by difficulties with Social Interaction, Social Communication and Flexibility of Thinking or Imagination. In addition, there may be sensory, motor and organisational difficulties.
Signs and Symptoms
The signs and symptoms include difficulties interacting with others and unusual thinking patterns. Behaviour is likely to be affected, as explained below:
Examples of Autism Spectrum Behaviours:
Communication
Echoing words/phrases without context
Taking an adult to the biscuit tin rather than asking or pointing
Taking language too literally
Social Interactions
Preference to play alone
Difficulty relating to other people
Not understanding other’s thoughts and emotions
Repetitive behaviours
Hand flapping
Toe walking
Spinning wheels
Lining up cars
Restrictive behaviour
Eating only yellow food
Insisting on walking the same route
Only watching Thomas the Tank Engine
…
People with autism may or may not have the following:
Exceptional attention to detail
Sensory differences, this is most noticeable when children are over-sensitive to stimuli e.g. distress at loud noises
Trouble with co-ordination
Unusual eating behaviour such as only eating certain foods
Additional learning disabilities
A very small percentage have unusual abilities for example with music or memory
People with autism and Asperger’s syndrome are at higher risk of developing or have these other conditions: learning disabilities, ADHD, epilepsy, dyspraxia, dyslexia, dyscalculia, OCD, depression, anxiety, bipolar, sleeping problems, Tourette’s syndrome or other tick disorders.
Diagnosis
People get diagnosed with autism or Asperger’s syndrome by their GP referring them to a Specialist Team. These days people are often diagnosed as children. The specialist team usually includes a Paediatrician, a Psychologist, a Psychiatrist, a Speech & Language Therapist and a Occupational Therapist.
Treatment Approaches
As every person with autism or Asperger’s syndrome is different, the treatment for each person is different; depending on the individual’s needs. However treatment includes interventions around developing communication skills, interaction skills, the ability to imagine and traditional academic skills.
It is also useful for parents/carers and other family members to go on a parenting and autism course. This is because these courses are packed with strategies to best support a child with autism.
Parents/carers and other family members can also get peer support which will help them feel less isolated and give them opportunities to learn from others at a local support group. If there isn’t a group locally, there’s lots of message boards online.
In the next post in this Autism & Asperger’s Syndrome Series I’ll be listing useful websites around autism and Asperger’s syndrome.
This is the second blog post in a series titled Wonderful Websites. The first post focused on General Health websites and can be read here. This post focuses on the most wonderful websites for mental health and mental illness.
1. Mind’s website is a treasure trove of mental health and mental illness information. It has an A-Z listing of mental health conditions, information about treatments, advice on how to support someone with mental illness, legal advice, urgent help advice and stories of people with mental illness.
CALM offers support for men who are feeling low or in crisis. They campaign for a change in culture, encouraging men to talk about how they are feeling and aim to eliminate the stigma of men seeking help due to mental illness. They hope to prevent as many male suicides as possible and also offer support for those affected by suicide.
3. SANE is a mental health charity credited with the Black Dog Campaign and the #EndTheStigma hashtag. The phrase black dog comes from Winston Churchill who described his depression as a black dog. SANE has also worked with Ruby Wax who coined the term Black Dog Tribe.
4. Head Meds tells you everything you ever wanted to know about medications for mental illness. It also gives information about conditions and shares people stories of mental illness. What I particularly like about this website is that it tells you how the medications affect sex, alcohol, weight, sleep and just about everything else.
A useful website that I always visit before medication reviews or at times when there’s discussions about changing my medication.
5. Bipolar UK has a great online eCommunity. I use it all the time and find it a very useful resource. People on the eCommunity are friendly and share their experiences around a wide range of topics.
The eCommunity goes a long way to making you feel less isolated and reassures you that you’re not the only one to be experiencing what you are. They also have support groups that are run by volunteers who are people living with bipolar. I used to go to a local group before it shutdown and found it invaluable on my road to recovery.
6. The Samaritans offer support by telephone, in person, email or by writing to them. Their telephone number and email is open 24/7/365, being a lifeline to people in a mental illness crisis.
7. Time To Change aims to end mental health discrimination. They do so by education in schools and by supporting employers. They have a wealth of information online including myths/facts, conditions, how to support your friend and a quiz to test your knowledge on mental health.
8. The Mental Health Foundation’s website has some informative publications which you can download or order a printed copy. Their vision is for everyone in the UK to have good mental health.
9. Anxiety UK has been around since the 70s and provides a wide range resources around anxiety. It’s website is informative, they offer an info line, a text service and training to organisations and companies.
Are there any wonderful websites for mental health and mental illness that I’m missing? If so, please leave a comment.
In the next post in my Wonderful Websites series I’ll be listing shopping websites.
The Z-Virus mutates people’s DNA. The majority of infected people become zombies, but a minority seem immune but the virus causes them to develop powers.
At first these powers like invisibility, telepathy and telekinesis aided survival. But as the Z-Virus continues to mutate the powers become more and more destructive.
Forced with no other choice, one group goes in search of a cure. But will they survive the roaming zombie hordes long enough to make an epic journey across the country to find the cure?
Join Alexis, Vis, Chan, Luke, Natalie, Grace, Chloe, Kyle, David and Goliath on this journey in Z-Virus Powers, the first instalment of this three part story.
Are you a Doctor, Nurse, Healthcare Assistant or Other Healthcare Professional? Or a Student?
Ways The Human Body Can Go Wrong covers every system of the body, what can go wrong when the body malfunctions or fails, symptoms (including why these happen) and cures/treatments available.
It includes knowledge around essential skills for Clinical Excellence such as Assessment, All Age Observational Norms, Models of Care, Communication/Handover Tips, the role of Specialities, Medication Tips, Dealing with Errors, Documentation Advice and a list of Useful Resources.
It is written in plain English, but highlights important medical terminology. It has been written at a level where someone from a non-medical background can pick it up and learn, but that it is still valuable to those with significant Clinical Experience.
My dear friend Roy decided to follow in his family’s footsteps and enlist in the Royal Navy.
I wanted to maintain our friendship, to continue to support Roy, to make him laugh and to entertain him. So I came up with the idea of sending him a weekly email on random topics.
These emails were on a variety of topics, always being entertaining, sometimes being interesting, sometimes funny and occasionally being serious.
Topics included: Jokes, Puzzles, Inspirational Quotes, Future Technology to Be Excited About, How to Fight A Shark, How to Woo A Turtle, Some of the Most Amazing Jobs in the World, Facts About Castles, Do Aliens Exist?, The Kindest Humans, A List of Cakes, 13 Weird Body Facts, 20 Super Space Facts, Ancient Egyptian Curses, 10 Weird Olympic Games, The Great Emu War of 1932, Quiz: Flags of the World, Legendary Characters from the UK and others.
My Royal Navy Friend is a copy of these emails. In total, there are 52 emails. Dispersed throughout the book are also Royal Navy facts and stories.
This workbook has been designed for anyone that is struggling with alcohol or has struggled with alcohol in the past.
It is written in a Motivational Interviewing style, one of the key therapies used to support people with alcohol issues. It has been designed using a trauma-informed approach and is strength–based.
What you will find in this book is more than just worksheets about alcohol. You’ll find all the tools someone needs to get into recovery from alcohol and stay there. It’s a therapy-based book, not an alcohol-based book.
SpellCast is a comprehensive compendium of spells, oils, charms and talismans. It is purely a book about magic, folk magic for the 21st century. The spells are ones that are tried and tested, with some that will stand the test of time.
In SpellCast you will read about the power of Instant Magic, of Banishment & Bindings, Blessings, Cleansing, Communication, Death, Employment, Finance & Money, Fertility, Friendship, Happiness & Joy, Health, Love & Relationships, Luck Magic, Protection, Transformative Magic and WishCraft.
This book will change your life. Your life will be abundant in all meanings of the word.
This book contains everything that you need to know about mental health and mental illness. Mental Health Wisdom is divided into three sections.
Understanding is section one and is all about the facts of mental health.
In section two, Empathy Through Lived Experience, the author shares his personal experience of mental illness.
Life Hacks is section three. It’s all about self-care and quick and easy ways to improve your mental health, prevent mental illness or relapse of mental illness.
Mental Health Wisdom contains everything that you need to know about mental health and mental illness.
Mental Health Wisdom is divided into three sections.
Understanding is section one and is all about the facts of mental health.
In section two, Empathy Through Lived Experience, the author shares his personal experience of mental illness.
Life Hacks is section three. It’s all about self-care and quick and easy ways to improve your mental health, prevent mental illness or relapse of mental illness.
If you find my blog educational or entertaining, please consider making a purchase or donation on Ko-Fi.
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