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Monthly Archives

May 2024

Treating My Vasculitis

By HealthNo Comments

Last week I was feeling a bit lost. My blood tests had come back positive for vasculitis. My ENT Consultant stated she had referred me to a vasculitis centre and started me on some steroids. She said that I wouldn’t need to be seen again by her, unless the Vasculitis Specialist requested it.

But instead of an appointment to see the Vasculitis Specialist, I got a letter through for another ENT appointment in a month’s time. Having checked this week, apparently the appointment is with a Vasculitis Specialist.

I didn’t know how to navigate the world of vasculitis. I didn’t really know much about what the diagnosis meant. I needed help. So I telephoned the Vasculitis UK’s helpline.

The volunteer who answered the phone was fantastic. But she didn’t have good news. The steroids just mask the symptoms and are not the treatment. The treatment is chemotherapy medications and immunosuppressant medications, with the aim of getting the vasculitis in remission (under control). I could be on this treatment for some time. As once the disease is under control, it will be about maintenance (keeping it under control).

The volunteer gave me some excellent advice around my local specialist treatment centre, which I have followed. Unfortunately, the centre hasn’t yet received a referral for me so I am following this up.

I have no idea what this means for me and my life at the moment. Right now, I’m just having to take it day by day.

Take Care,


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Book Review: The Pagan Bard by Luna Hare

By Amazon, Books & Authors, Creativity, Nature, Paganism, ReviewsNo Comments

The Pagan Bard by Luna Hare is a book containing 55 poems about the seasons and other natural/spiritual poetry. They are spread over 76 pages and are beautifully presented along with images and swirls.

The poems have been written over 30 years and are wonderfully wholesome. I thoroughly enjoyed reading each and everyone of them. In each poem, Luns takes you on a deeply personal and spiritual journey.

This book is not only enlightening but also entertaining.

If you’re looking for a nature or pagan themed poetry book, this is the one for you.

Full disclosure: I helped to edit this book.

Review soon,


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Lucy Spraggan Live at Manchester Academy

By Gigs & Shows, Music & RadioNo Comments

On Thursday a good friend and I went to see Lucy Spraggan live at Manchester Academy.

We had a great time and Lucy was in great form. She also performed my favourite song of her’s balance:

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Write soon,


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The Druid Temple – Yorkshire

By Friends & Family, Happiness & Joy, PaganismNo Comments

Yesterday my good friend Simon and I went to visit The Druid’s Temple in Yorkshire. Not a real Druid’s temple, but a rather pleasant structure built around 200 years ago. The folly was built to give people jobs so that they could feed their families.

Essential Information

  • The is no charge to see The Druid’s Temple, but there is a charge for parking.
  • The Druid’s Template is about a 10 minute walk from parking, uphill, so might not be suitable for people with mobility problems.
  • There is a Cafe with toilets near to parking.

Blog soon,


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