I am pleased to announce that my vasculitis is in remission (see this page on Vasculitis UK for more information). This means that there are no active signs of the disease and my blood results show no signs of inflammation.
This is thanks to the excellent care of the Specialist Doctors in the NHS and the Rituximab infusions provided by the NHS.
All of the care I have received from NHS Staff has been nothing short of exceptional. Staff have been kind and compassionate. They have delivered safe, high quality and evidenced-based care.
The care has been driven by clinical need, without staff having to worry about the cost and without me having to worry about my ability to pay. I am beyond grateful.
My blood sugars have continued to reduce with my Hba1C currently being 52. My Hba1C was 58 in February 2025 and 99 before that. My Medtronic insulin pump (the MiniMed 780G) has played a massive role in this reduction, but so have better diet, increased exercise and loss of a bit of weight.
I have come off all medications, apart from insulin. This includes medications for high blood pressure, high cholesterol and mental health medications. I have made a number of changes to my life to become the happiest that I have ever been.
The hole in the roof of my mouth has gotten slightly bigger, now being about 1cm in size. However given the improvements to my overall health and the fact that the vasculitis is now in remission, the surgeon is keen to repair the hole in the roof of my mouth in the coming months.
That’s about it for my health update. Write soon,
Antony
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