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The FreeStyle Libre Flash Glucose Monitoring System: Getting Started on My New Health Plan

By Health, Technology, Thinking9 Comments

Hello all,

I’m a type 1 diabetic who has always struggled to have good control of my blood sugars.

I’ve been using a traditional glucose meter (a TEE2). Every diabetic will have a glucose meter. The meter tells the tester what their blood sugar is at the time that the reading is taken.

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My traditional glucose meter the TEE2 by Spirit Healthcare Ltd.

Nothing had really changed in the management or treatment of my diabetes for the last decade. That was until just over a week ago. It started when I saw this photo in the media:

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I saw this photo of Theresa May (the current Prime Minister) who is Type 1 diabetic. I wondered what it was on her arm. (I’ve added on the circle and arrow on to the photo.)

I posted the photo on Facebook and asked if anyone knew what it was. I quickly learned that it was a sensor for the FreeStyle Libre Glucose Monitoring System.

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The FreeStyle Libre Sensor (left) and Reader (right).

 The FreeStyle Libre Glucose Monitoring System is a revolutionary and life changing way to monitor blood sugars for diabetics.

A sensor that has a needle that goes into the interstitial fluid is placed on the back of an arm. The sensor on the skin is about the size of a two pound coin. The sensor takes a reading every minute and stores readings at 15 minute intervals. The sensor can store 8 hours of data. A sensor lasts 14 days.

A Reader downloads data from the sensor, including the most current blood sugar reading by placing the reader near the sensor (using Fear Field Communication (NFC)). You don’t even need a Reader if you have a phone with NFC. You can download an App available for both Android and Apple smartphones that allows you to use your phone as a reader. I haven’t got a phone with NFC, so would need a reader.

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So I did some research. I read the entire FreeStyle Libre website including watching tutorial videos and FAQs. Then I read some posts on the Diabetes UK Forums. I watched every video about the FreeStyle Libre on YouTube.

I discovered that in November of last year (2017) the FreeStyle Libre became available on the NHS. However from reading the forums it seemed that availability depended on local criteria.

I decided I needed to trial the FreeStyle Libre as part of a new health plan to improve my health and prevent illness where possible.

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I managed to buy two sensors at my local Boots Pharmacy. A sensor cost more than £50 each. This was because I thought I’d probably have to self-fund due to the cost to the NHS.
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But I couldn’t buy a Reader anywhere. I rang my local Diabetes Specialists Centre. Their criteria for starting me on the FreeStlye Libre is: 1. is type one diabetic and 2. testing blood sugar 6-10 times a day. I met the criteria so they sorted me out with a Reader.

The Diabetic Specialist Nurse at my local Diabetes Centre was amazing. She sorted me a Reader. I saw the Diabetic Consultant in January and have been awaiting an appointment with a Dietitian. She said she’d chase this.

The Diabetic Specialist Nurse and I also arranged an appointment together in a few weeks time. This is so I can give her an update on my use of the FreeStyle Libre and so that she could write to my GP about putting the sensors on prescription. She informed me that if there was no improvement in my blood sugar control after 6 months, that my GP may choose to stop prescribing the sensors.

Excited I put on the sensor:

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The sensor should be placed on the back of the arm. Start by cleaning with a pre-injection swab (provided with the sensor).
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The sensor is assembled by pulling off the lid of the white tub, then matching up the gray lines and pressing down. Really easy and simple.
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Place to your skin and press down. It’s painless and makes a clicking sound.
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There it is. Sensor on.
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I’ve chosen to put a 10cmx10cm dressing on my sensor to better protect it.
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All set up. Quick, easy and simple. I’ll let you know how I go on.

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I’ve been wearing the sensor and using the reader for a few days now. So here’s the pros and cons I’ve discovered so far:

Pros Cons
  • The sensor isn’t noticed by others being on the back of my arm (covered even by short sleeves).
  • I don’t feel the sensor in my arm at all. No discomfort or pain.
  • The reader is pocked sized.
  • It’s quick and easy. A quick swipe and you have your current blood sugar along with a line graph showing your blood sugar throughout the day (and night) from readings the sensor has taken.
  • It’s more discrete swiping the reader near your arm, rather than getting out your glucose meter and pricking your finger.
  • I can check my blood sugar as often as I want, without worrying about running out of testing strips.
  • The reader has a whole host of useful features including: reading alarm reminders, logbook, daily graph, average glucose, daily patterns, time in target glucose range (which you set when you setup the reader), sensor usage, add notes to go with readings (including units of rapid-acting insulin, units of long-acting insulin, food – carbs, medicine and exercise).
  • It tells you how many days you have before you need to change the senor on the home screen.
  • The daily graph along with arrows showing whether your blood sugar is increasing (and how quickly), stable or decreasing (and how quickly) are enabling me to make better bolus insulin adjustments. The food notes will enable me to better match the number of rapid insulin units I need to administer based on the number carbs I’ve eaten.
  • The reader is helping me to identify trends in my blood sugars and helping me prevent my blood sugar from rising too high.
  • FreeStyle have software for both Windows on Mac that uses the data to create reports that you can share with Health Professionals.
  • If you have a phone with NFC you can use an App on your phone rather than using the reader. The Apps appear to have all the same features as the Reader.
  • The reader comes with with a USB wire (for connecting to computers) and has a plug to charge it from mains. According to the manufacturer, a full charge lasts about a week with average use.
  • The sensor takes the reading from interstitial fluid rather than blood. This means that the reading is 10-15 mins behind. This is not an issue if your blood sugar is stable, but could be an issue if it’s dropping.
  • The reader feels a little flimsy and doesn’t come with any cover or pouch to protect it from damage and general wear and tear.
  • The DVLA don’t currently allow readings from this monitor to count as a before driving test. Therefore a traditional glucose meter and finger pricking is still required prior to driving.
  • The sensors are expensive, costing over £50 each. This is a Con whether you are paying for them privately or whether the NHS is being charged for them (as we pay for the NHS through our taxes).

I was going to do this blog posts as a vlog (video blog). But I couldn’t get my head around the video editing software, so opted for the written method instead. That’s why the photos of me look like image captures from a video, because they are.

The FreeStyle Libre Glucose Monitoring System is just one part of my new health plan. I also want to become SmokeFree for good and lose weight through a better diet and regular exercise.

Write soon,

Antony



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Thursday 19 July 2018

Wonderful Websites – Mental Health and Mental Illness

By Health, The Web2 Comments
wonderful-websites-image This is the second blog post in a series titled Wonderful Websites. The first post focused on General Health websites and can be read here. This post focuses on the most wonderful websites for mental health and mental illness.

1. Mind’s website is a treasure trove of mental health and mental illness information. It has an A-Z listing of mental health conditions, information about treatments, advice on how to support someone with mental illness, legal advice, urgent help advice and stories of people with mental illness.

2. CALM (Campaign Against Living Miserably) is a movement against male suicide. Suicide is the biggest killer of men under 45 in the UK.

CALM offers support for men who are feeling low or in crisis. They campaign for a change in culture, encouraging men to talk about how they are feeling and aim to eliminate the stigma of men seeking help due to mental illness. They hope to prevent as many male suicides as possible and also offer support for those affected by suicide.

3. SANE is a mental health charity credited with the Black Dog Campaign and the #EndTheStigma hashtag. The phrase black dog comes from Winston Churchill who described his depression as a black dog. SANE has also worked with Ruby Wax who coined the term Black Dog Tribe.

4. Head Meds tells you everything you ever wanted to know about medications for mental illness. It also gives information about conditions and shares people stories of mental illness. What I particularly like about this website is that it tells you how the medications affect sex, alcohol, weight, sleep and just about everything else.

A useful website that I always visit before medication reviews or at times when there’s discussions about changing my medication.

5. Bipolar UK has a great online eCommunity. I use it all the time and find it a very useful resource. People on the eCommunity are friendly and share their experiences around a wide range of topics.

The eCommunity goes a long way to making you feel less isolated and reassures you that you’re not the only one to be experiencing what you are. They also have support groups that are run by volunteers who are people living with bipolar. I used to go to a local group before it shutdown and found it invaluable on my road to recovery.

6. The Samaritans offer support by telephone, in person, email or by writing to them. Their telephone number and email is open 24/7/365, being a lifeline to people in a mental illness crisis.

7. Time To Change aims to end mental health discrimination. They do so by education in schools and by supporting employers. They have a wealth of information online including myths/facts, conditions, how to support your friend and a quiz to test your knowledge on mental health.

8. The Mental Health Foundation’s website has some informative publications which you can download or order a printed copy. Their vision is for everyone in the UK to have good mental health.

9. Anxiety UK has been around since the 70s and provides a wide range resources around anxiety. It’s website is informative, they offer an info line, a text service and training to organisations and companies.

Are there any wonderful websites for mental health and mental illness that I’m missing? If so, please leave a comment.

In the next post in my Wonderful Websites series I’ll be listing shopping websites.

Blog soon,

Antony

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I aim for posts on this blog to be informative, educational and entertaining. If you have found this post useful or enjoyable, please consider making a contribution by Paypal:


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Sunday 10 June 2018

Wonderful Websites – General Health

By Health, The WebNo Comments
wonderful-websites-image This is the first blog post in a series titled Wonderful Websites. This post focuses on the most wonderful websites for general health.

1. NHS Choices is crammed with health information. Information on health conditions, treatments, medications, public health issues, carers right, services, practically everything you could ever want to know about health and healthcare in the UK. Delivered by the NHS you can be assured of correct information that is up to date and based on research and evidence.

It has some great online tools such as: BMI Calculator, Mood self-assessment, Sleep self-assessment and many more.

2. Patient.info has a A-Z list of articles written by doctors, information videos, a symptom checker and an active online community. On more than one occasion while at work in the NHS, I’ve seen doctors checking this valuable website.

3. NetDoctor is similar to Patient.Info, but with more of a focus on healthy living and healthy eating.

4. eMC (Medicines.org.uk) is a useful website for looking up information about medicines.

I use British National Formulary (BNF) but the medical terminology can be difficult for some from a non-medical/non-nursing background to understand; this is why eMC made it on this list instead of the BNF.

5. Office of National Statistics – Health and Social Care is the best place to find statistical information about health. It is regularly updated based on data from the NHS, Local Authories and other Government Departments.

6. National Institute of Clinical Excellence (NICE) provides pathways, guidelines and advice across the UK for best possible evidence-based healthcare. The guidance they provide is developed by groups of clinical experts who provide experience of what works in practice and by examining and analysing research.

If you want to know what care you or a relative or friend should be receiving and check that it’s high quality visit NICE’s website.

7. Health For Teens I found while doing research for this post. It’s specifically aimed at teenagers and looks appealing. They even create content in consultation with young people. I think the name of the website maybe off-putting to young people though – but this is just my personal opinion.

Are there any health websites that you think are useful that aren’t on the list? If so leave a comment below and let me know.

The next post in the Wonderful Websites series will look at websites for mental health and mental illness.

Write soon,

Antony

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Saturday 9 June 2018

Mental Health Focus: How to support someone with Mental Illness

By Health, Thinking4 Comments
mental-health-focus Supporting someone with mental illness can be difficult. What should you say and not say? What should you do and not do?

First educate yourself around mental illness. Mental health charities Mind and SANE both have informative websites.

You can see General Statistics for Mental Health in the UK here. You can see a A list of Famous People who have experienced Mental Illness here. You can also see 15 Lies That Depression Would Have You Believe here.

Second: You must look after yourself. You can’t support anyone else if you are not well physically, mentally or emotionally. You may find my blog post 10 Easy Ways to Improve Your Mental Health useful.

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On to the practical advice to support someone with mental illness:

  • Stay in contact with them. Ask them how they would like you to keep in contact. Some may may prefer phoning or seeing; whereas others may prefer messaging or texting.
  • Unconditional love and care. Let them know that you love them unconditionally and care for them deeply. Don’t have any expectation that they will reciprocate.
  • Listen to what they say and don’t assume anything.
  • Ensure that there are no distractions when you are with them or on the phone to them. Put your phone on silent and make sure any loud children are pets are out of the way (if you have them).
  • Offer practical support. Go shopping for them or with them, help them to clean, cook them a meal. Whatever it is that they need. They maybe resistant to the idea of practical help, so reassure them that you are happy to help and that you know they’d do it for you.
  • Remind them to take their medication or when appointments are due. People with mental illness tend to have poor short term memories.
  • Ask them about their appetite and diet. If they have an appetite but are struggling to make anything (due to lack of energy and/or motivation), find out what there favourite meal is and cook it for them.
  • Offer distracting activities. Distracting activities that you can both do together can give someone a break from their own critical inner of voice. The activities can be something as simple as a walk around the park. Make sure you are always led by the person with mental illness though. If they say that they are too unwell or tired to do the activity, don’t take it personally. And certainly don’t judge them or take offence.
  • Help them access support. This could include going with them to GP, counselling sessions or mental health service appointments. Offer to sit in appointments with them, but let them know that it’s okay if they want to be seen alone.
  • Be understanding. Someone with mental illness may cancel plans at the last minute. You may arrive at their house to find it messy and them unclean. Don’t take it personally, let them know that you understand and ask if there is anyway that you can help.
  • Be patient. Like any illness, mental illness takes the right treatment, the right support and time for them to start to feel better.
  • Limit questions and time spent with them, if you feel they are exhausted and need to rest. You’ll be able to spot if they need to rest by: pulling on their hair, forgetting what you’ve said to them, being very slow to respond, unable to think of words, dropping of their head, shuffling of feet and other body language people use when they look like they are about to drop off to sleep.
  • Be aware of your own body language and theirs. Try and display open body language and avoid mirroring.
  • Try not to give advice, as often it is unrealistic and unhelpful. For example never advise someone with depression to exercise more or have an healthier diet. This person has probably used all of their energy and motivation to get out of the bed. This single action has left them more exhausted than they have ever felt in their life. So advising them to exercise, eat an healthier diet or make big changes to their life will seem unachievable and may come across as if you are blaming them for their depression.
  • Sign-post them to useful resources. Such as: NHS Choices, Time to Change, Mental Health Foundation, Mind, SANE, Anxiety UK and Bipolar UK.

This blog post is part of a series that focuses on mental health. Other posts in the series include: Mental Health Focus: Treatment & Recovery, Mental Health Focus: A List of Common Conditions and Mental Health Focus: 5 Brilliant TED Talks About Mental Health.

You can read about my experiences of mental illness here: Life Hiatus – My Mental Health In-Patient Admission and Diagnosis of a ‘Mood Disorder’, My Health Woes: Clinical Depression, Dental Abscesses, The Lump and The Emergency Surgery, Finally…in Recovery and getting Back to Life and Mental Health Focus: I’ve Been One of the 1 in 4.

Take care,

Antony

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I aim for posts on this blog to be informative, educational and entertaining. If you have found this post useful or enjoyable, please consider making a contribution by Paypal:


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Wednesday 16 May 2018
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