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The FreeStyle Libre Flash Glucose Monitoring System: Getting Started on My New Health Plan

By Thursday 19 July 2018Health, Technology, Thinking

Hello all,

I’m a type 1 diabetic who has always struggled to have good control of my blood sugars.

I’ve been using a traditional glucose meter (a TEE2). Every diabetic will have a glucose meter. The meter tells the tester what their blood sugar is at the time that the reading is taken.

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My traditional glucose meter the TEE2 by Spirit Healthcare Ltd.

Nothing had really changed in the management or treatment of my diabetes for the last decade. That was until just over a week ago. It started when I saw this photo in the media:

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I saw this photo of Theresa May (the current Prime Minister) who is Type 1 diabetic. I wondered what it was on her arm. (I’ve added on the circle and arrow on to the photo.)

I posted the photo on Facebook and asked if anyone knew what it was. I quickly learned that it was a sensor for the FreeStyle Libre Glucose Monitoring System.

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The FreeStyle Libre Sensor (left) and Reader (right).

The FreeStyle Libre Glucose Monitoring System is a revolutionary and life changing way to monitor blood sugars for diabetics.

A sensor that has a needle that goes into the interstitial fluid is placed on the back of an arm. The sensor on the skin is about the size of a two pound coin. The sensor takes a reading every minute and stores readings at 15 minute intervals. The sensor can store 8 hours of data. A sensor lasts 14 days.

A Reader downloads data from the sensor, including the most current blood sugar reading by placing the reader near the sensor (using Fear Field Communication (NFC)). You don’t even need a Reader if you have a phone with NFC. You can download an App available for both Android and Apple smartphones that allows you to use your phone as a reader. I haven’t got a phone with NFC, so would need a reader.

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So I did some research. I read the entire FreeStyle Libre website including watching tutorial videos and FAQs. Then I read some posts on the Diabetes UK Forums. I watched every video about the FreeStyle Libre on YouTube.

I discovered that in November of last year (2017) the FreeStyle Libre became available on the NHS. However from reading the forums it seemed that availability depended on local criteria.

I decided I needed to trial the FreeStyle Libre as part of a new health plan to improve my health and prevent illness where possible.

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I managed to buy two sensors at my local Boots Pharmacy. A sensor cost more than £50 each. This was because I thought I’d probably have to self-fund due to the cost to the NHS.

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But I couldn’t buy a Reader anywhere. I rang my local Diabetes Specialists Centre. Their criteria for starting me on the FreeStlye Libre is: 1. is type one diabetic and 2. testing blood sugar 6-10 times a day. I met the criteria so they sorted me out with a Reader.

The Diabetic Specialist Nurse at my local Diabetes Centre was amazing. She sorted me a Reader. I saw the Diabetic Consultant in January and have been awaiting an appointment with a Dietitian. She said she’d chase this.

The Diabetic Specialist Nurse and I also arranged an appointment together in a few weeks time. This is so I can give her an update on my use of the FreeStyle Libre and so that she could write to my GP about putting the sensors on prescription. She informed me that if there was no improvement in my blood sugar control after 6 months, that my GP may choose to stop prescribing the sensors.

Excited I put on the sensor:

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The sensor should be placed on the back of the arm. Start by cleaning with a pre-injection swab (provided with the sensor).

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The sensor is assembled by pulling off the lid of the white tub, then matching up the gray lines and pressing down. Really easy and simple.

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Place to your skin and press down. It’s painless and makes a clicking sound.

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There it is. Sensor on.

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I’ve chosen to put a 10cmx10cm dressing on my sensor to better protect it.

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All set up. Quick, easy and simple. I’ll let you know how I go on.

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I’ve been wearing the sensor and using the reader for a few days now. So here’s the pros and cons I’ve discovered so far:

Pros Cons
  • The sensor isn’t noticed by others being on the back of my arm (covered even by short sleeves).
  • I don’t feel the sensor in my arm at all. No discomfort or pain.
  • The reader is pocked sized.
  • It’s quick and easy. A quick swipe and you have your current blood sugar along with a line graph showing your blood sugar throughout the day (and night) from readings the sensor has taken.
  • It’s more discrete swiping the reader near your arm, rather than getting out your glucose meter and pricking your finger.
  • I can check my blood sugar as often as I want, without worrying about running out of testing strips.
  • The reader has a whole host of useful features including: reading alarm reminders, logbook, daily graph, average glucose, daily patterns, time in target glucose range (which you set when you setup the reader), sensor usage, add notes to go with readings (including units of rapid-acting insulin, units of long-acting insulin, food – carbs, medicine and exercise).
  • It tells you how many days you have before you need to change the senor on the home screen.
  • The daily graph along with arrows showing whether your blood sugar is increasing (and how quickly), stable or decreasing (and how quickly) are enabling me to make better bolus insulin adjustments. The food notes will enable me to better match the number of rapid insulin units I need to administer based on the number carbs I’ve eaten.
  • The reader is helping me to identify trends in my blood sugars and helping me prevent my blood sugar from rising too high.
  • FreeStyle have software for both Windows on Mac that uses the data to create reports that you can share with Health Professionals.
  • If you have a phone with NFC you can use an App on your phone rather than using the reader. The Apps appear to have all the same features as the Reader.
  • The reader comes with with a USB wire (for connecting to computers) and has a plug to charge it from mains. According to the manufacturer, a full charge lasts about a week with average use.
  • The sensor takes the reading from interstitial fluid rather than blood. This means that the reading is 10-15 mins behind. This is not an issue if your blood sugar is stable, but could be an issue if it’s dropping.
  • The reader feels a little flimsy and doesn’t come with any cover or pouch to protect it from damage and general wear and tear.
  • The DVLA don’t currently allow readings from this monitor to count as a before driving test. Therefore a traditional glucose meter and finger pricking is still required prior to driving.
  • The sensors are expensive, costing over £50 each. This is a Con whether you are paying for them privately or whether the NHS is being charged for them (as we pay for the NHS through our taxes).

I was going to do this blog posts as a vlog (video blog). But I couldn’t get my head around the video editing software, so opted for the written method instead. That’s why the photos of me look like image captures from a video, because they are.

The FreeStyle Libre Glucose Monitoring System is just one part of my new health plan. I also want to become SmokeFree for good and lose weight through a better diet and regular exercise.

Write soon,

Antony



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9 Comments

  • Colin Watts says:

    Glad to see It’s working for you lad.

    • Antony says:

      Hi Colin,

      Thanks for the comment. It’s awesome and is really helping me get better control of my blood sugars.

      Went for a Diabetic Annual Review today. My bloods are improving! For the first time in a couple of years. My cholesterol and lipids have lowered, as has my HbA1c. My blood results aren’t in the normal range yet, but improving is definitely a positive and shows that my hard work is starting to pay off

      Hope you have a good weekend,

      A x

  • Eli Brown says:

    Hi,
    Appreciating for providing us such a healthy information. My Fatehr-In-Law is Type II Diabetic for last couple of decades. I have couple of questions before buying Libre. Would appreciate if you could help me answering them so that it would easier for me to decision for his health?
    Q 1) Does FreeStyle Libre Pro a waterproof sensor?
    Q2) I have read in many blogs about the Ambrosia’s nightrider blucon. I don’t know much about it but bloggers says it makes it’s a third party device which sits on the FSL and gives reading to mobile every 5 minutes. It’s strange that people not only in US are using it but it’s being used almost in every part of world. Moreover I have read it gives high and low alerts, caregivers can follow readings too. Though It looks good to hear that we’ll be notified about highs and lows but is it actually true? Have you ever heard about it?
    Looking for your suggestions.
    Thanks in advance!

    • Antony says:

      Hi Eli,

      Thanks for the comment. I will do my best to answer your questions:

      Q 1) Does FreeStyle Libre Pro a waterproof sensor?
      No. The sensor is deigned to stay on for 2 weeks. I have a bath daily and have never had one fall off. However if your father-in-law swims regularly and you are concerned, a clear see through Tegerderm dressing can be bought cheaply to cover it.

      Q2) I have read in many blogs about the Ambrosia’s nightrider blucon.
      I don’t know anything about Ambrosia’s Nightrider, so can’t comment.

      What aspect of diabetes is your father-in-law struggling with? High or Low Blood Sugars?

      If it’s high blood sugars, he should consider a low carb diet as this can really make a difference.

      With the Libre and a low carb diet, I’ve managed to reduce my blood sugars and HBA1C from dangerously high to acceptable levels in about a year.

      Hope that’s helpful.

      A x

  • kristine jens says:

    Hi Eli,
    my 13years old daughter Rini is Type 1 Diabetic .2years back, some one told me about Nightrider blucon.also told me about follow blucon app & Alarts if BG goes out of range.I bought it online at Ambrosiasys.com Two years Back.Thanks to Ambrosia for a priceless device. now we can take sound sleep, go office without worries blucon send alerts every five minutes
    on my mobile phone.

  • Jaime Rose says:

    The best blood sugar monitor (freestyle glucose meter) is now called the FreeStyle Optium. You do NOT need to change the meter. The test strips for your meter are now called FreeStyle Optium Test Strips (formerly called Optium Plus Test Strips).

    Comment Edited: Removed link as was an advertisement.

  • Molina Morgan says:

    A couple of weeks back, my daughter was diagnosed with diabetes at the young age of 20. This thing made everyone in the family worry about her health. Then, I read a review of Nightrider BluCon and how it helped a person in his battle with diabetes. I bought the same for my daughter, and the device is worth appreciating. Thank you, team Ambrosia for such a reliable product.

    • Antony says:

      Hi Molina,

      Thanks for the comment. There’s a few devices that turn the FreeStyle Libre into a Continuous Glucose Monitoring System. My hope is that Abbot either endorse one or come up with a way to make it a CGM on its own in the near future.

      I hope that Abbot come up with an insulin pump that works with the FreeStyle Libre.

      I’d like to see our NHS (our healthcare system in the U K) stop putting people on the FreeStyle Libre as a trial basis or with the option to take it away if blood sugars and HBA1C test results don’t improve.

      A x

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