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My New Insulin Regime 2 – Slowly Getting There

By Health, LifeNo Comments

I’m still trying to get my new insulin regime sorted. I need to increase the dose of my long acting insulin (Lantus) and get the Insulin to Carbs ratio right at tea time.

Recently I’ve got so tired of high blood sugars and felt like I’m not getting anywhere. When I feel this way, I remind myself to just take another step forward, keep going and keep trying. I will get there. Here’s my new self-adjusted insulin regime:

my-new-insulin-regime-2-August-2018

My New Insulin Regime 2

I will write a more substantial blog post soon.

Antony

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My New Insulin Regime

By Health, LifeNo Comments

I had an an appointment with my Diabetic Specialist Nurse at the start of this week. She looked over my blood sugars and insulin since January. The upshot is that I’ve not been taking enough long acting insulin (Lantus) and been taking too much rapid acting insulin (Novorapid).

I have huge morning peaks that look like mountains on my Freestyle Libre Reader (read more about the Freestyle Libre here). Possibly the dawn phenomenon?

I’m counting my carbs using the Carbs & Cals App. But I’m awaiting an appointment with a Dietitian to get some advice, help and support around my Insulin to Carbs Ratios. In the meantime my Diabetic Specialist Nurse started me on a new insulin regime.

It’s been tweaked a few times by Diabetic Specialist Nurses based on BM readings before meals and two hours after meals. At one point my BM reached 26.6 mmol/L, I had been told that I’m not allowed to bolus any rapid acting insulin, so I went on a two hour walk to bring it down.

This week I’ve been cranky, not slept well and even had some significant cognitive fatigue all caused by high blood sugars.

Here is my new/current insulin regime:

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My New Insulin Regime.

Let’s hope this latest tweak leads to lower blood sugars and eliminates the morning peaks.

Blog soon,

Antony

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The FreeStyle Libre Flash Glucose Monitoring System: Getting Started on My New Health Plan

By Health, Technology, Thinking9 Comments

Hello all,

I’m a type 1 diabetic who has always struggled to have good control of my blood sugars.

I’ve been using a traditional glucose meter (a TEE2). Every diabetic will have a glucose meter. The meter tells the tester what their blood sugar is at the time that the reading is taken.

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My traditional glucose meter the TEE2 by Spirit Healthcare Ltd.

Nothing had really changed in the management or treatment of my diabetes for the last decade. That was until just over a week ago. It started when I saw this photo in the media:

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I saw this photo of Theresa May (the current Prime Minister) who is Type 1 diabetic. I wondered what it was on her arm. (I’ve added on the circle and arrow on to the photo.)

I posted the photo on Facebook and asked if anyone knew what it was. I quickly learned that it was a sensor for the FreeStyle Libre Glucose Monitoring System.

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The FreeStyle Libre Sensor (left) and Reader (right).

The FreeStyle Libre Glucose Monitoring System is a revolutionary and life changing way to monitor blood sugars for diabetics.

A sensor that has a needle that goes into the interstitial fluid is placed on the back of an arm. The sensor on the skin is about the size of a two pound coin. The sensor takes a reading every minute and stores readings at 15 minute intervals. The sensor can store 8 hours of data. A sensor lasts 14 days.

A Reader downloads data from the sensor, including the most current blood sugar reading by placing the reader near the sensor (using Fear Field Communication (NFC)). You don’t even need a Reader if you have a phone with NFC. You can download an App available for both Android and Apple smartphones that allows you to use your phone as a reader. I haven’t got a phone with NFC, so would need a reader.

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So I did some research. I read the entire FreeStyle Libre website including watching tutorial videos and FAQs. Then I read some posts on the Diabetes UK Forums. I watched every video about the FreeStyle Libre on YouTube.

I discovered that in November of last year (2017) the FreeStyle Libre became available on the NHS. However from reading the forums it seemed that availability depended on local criteria.

I decided I needed to trial the FreeStyle Libre as part of a new health plan to improve my health and prevent illness where possible.

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I managed to buy two sensors at my local Boots Pharmacy. A sensor cost more than £50 each. This was because I thought I’d probably have to self-fund due to the cost to the NHS.

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But I couldn’t buy a Reader anywhere. I rang my local Diabetes Specialists Centre. Their criteria for starting me on the FreeStlye Libre is: 1. is type one diabetic and 2. testing blood sugar 6-10 times a day. I met the criteria so they sorted me out with a Reader.

The Diabetic Specialist Nurse at my local Diabetes Centre was amazing. She sorted me a Reader. I saw the Diabetic Consultant in January and have been awaiting an appointment with a Dietitian. She said she’d chase this.

The Diabetic Specialist Nurse and I also arranged an appointment together in a few weeks time. This is so I can give her an update on my use of the FreeStyle Libre and so that she could write to my GP about putting the sensors on prescription. She informed me that if there was no improvement in my blood sugar control after 6 months, that my GP may choose to stop prescribing the sensors.

Excited I put on the sensor:

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The sensor should be placed on the back of the arm. Start by cleaning with a pre-injection swab (provided with the sensor).

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The sensor is assembled by pulling off the lid of the white tub, then matching up the gray lines and pressing down. Really easy and simple.

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Place to your skin and press down. It’s painless and makes a clicking sound.

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There it is. Sensor on.

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I’ve chosen to put a 10cmx10cm dressing on my sensor to better protect it.

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All set up. Quick, easy and simple. I’ll let you know how I go on.

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I’ve been wearing the sensor and using the reader for a few days now. So here’s the pros and cons I’ve discovered so far:

Pros Cons
  • The sensor isn’t noticed by others being on the back of my arm (covered even by short sleeves).
  • I don’t feel the sensor in my arm at all. No discomfort or pain.
  • The reader is pocked sized.
  • It’s quick and easy. A quick swipe and you have your current blood sugar along with a line graph showing your blood sugar throughout the day (and night) from readings the sensor has taken.
  • It’s more discrete swiping the reader near your arm, rather than getting out your glucose meter and pricking your finger.
  • I can check my blood sugar as often as I want, without worrying about running out of testing strips.
  • The reader has a whole host of useful features including: reading alarm reminders, logbook, daily graph, average glucose, daily patterns, time in target glucose range (which you set when you setup the reader), sensor usage, add notes to go with readings (including units of rapid-acting insulin, units of long-acting insulin, food – carbs, medicine and exercise).
  • It tells you how many days you have before you need to change the senor on the home screen.
  • The daily graph along with arrows showing whether your blood sugar is increasing (and how quickly), stable or decreasing (and how quickly) are enabling me to make better bolus insulin adjustments. The food notes will enable me to better match the number of rapid insulin units I need to administer based on the number carbs I’ve eaten.
  • The reader is helping me to identify trends in my blood sugars and helping me prevent my blood sugar from rising too high.
  • FreeStyle have software for both Windows on Mac that uses the data to create reports that you can share with Health Professionals.
  • If you have a phone with NFC you can use an App on your phone rather than using the reader. The Apps appear to have all the same features as the Reader.
  • The reader comes with with a USB wire (for connecting to computers) and has a plug to charge it from mains. According to the manufacturer, a full charge lasts about a week with average use.
  • The sensor takes the reading from interstitial fluid rather than blood. This means that the reading is 10-15 mins behind. This is not an issue if your blood sugar is stable, but could be an issue if it’s dropping.
  • The reader feels a little flimsy and doesn’t come with any cover or pouch to protect it from damage and general wear and tear.
  • The DVLA don’t currently allow readings from this monitor to count as a before driving test. Therefore a traditional glucose meter and finger pricking is still required prior to driving.
  • The sensors are expensive, costing over £50 each. This is a Con whether you are paying for them privately or whether the NHS is being charged for them (as we pay for the NHS through our taxes).

I was going to do this blog posts as a vlog (video blog). But I couldn’t get my head around the video editing software, so opted for the written method instead. That’s why the photos of me look like image captures from a video, because they are.

The FreeStyle Libre Glucose Monitoring System is just one part of my new health plan. I also want to become SmokeFree for good and lose weight through a better diet and regular exercise.

Write soon,

Antony



I aim for posts on this blog to be informative, educational and entertaining. If you have found this post useful or enjoyable, please consider making a contribution by Paypal:


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1 Life Lesson I’ve Learned for Every Year of My Adult Life

By ThinkingNo Comments

Life is about growth through learning and experience. So here’s 1 lesson life has taught me for every year of my adult live:

Age 18 – The importance of good and lifelong friendships. What makes a good friend including care, kindness, a sense of humour and loyalty.

Age 19 – The importance of having joy in my life. Creating opportunities for joy, seeking it out and chasing it are all essential activities for me.

Madame Tussaunds Blackpool on a thrown

Me on a thrown

Antony-Simpson-Writer

Me

Age 20 – That I’m never going to please everyone. Not everyone will like me or get me. That doesn’t mean I should stop trying. If I can make somebody laugh with a funny story or a joke, I’m going to do it. The smile or laughter is always worth it for me.

I just accept that not everyone is going to be pleased with what I do or don’t do. As long as I am happy with my intentions, actions and omissions, that’s good enough for me.

Age 21 – A diagnosis of a chronic illness (in my case type 1 diabetes) starts with grief. I mourned the loss of my working pancreas and cursed my faulty immune system.

Age 22 – Independence is extremely important to me. Getting my driving licence and being smothered in a relationship both helped me to realise this.

Age 23 – In the outside world many people are far to happy to psychologically tear strips off you. So inside your home should feel safe, full of compassion and be filled with a feeling of care. How I felt at home when I was younger and buying my own apartment helped me to realise this.

Age 24 – Sometimes I just have to do certain things, otherwise I’d always wonder What if?

Heartbreak sometimes heals with the passage of time. A lot of time. More than days, weeks or months. Years. Sometimes even longer than that.

Sometimes the heart doesn’t heal at all, it just scabs over like a scraped knee. Ready for you to pick at it or for something to come along and reopen the wound.

Age 25 – Not everyone gets to live a full and long life. This feels unfair. Life is precious.

The shock of an unexpected death is a thousand times worse than the grief of the loss. It is spiritually, mentally and emotionally exhausting. The disbelief that comes from the shock can last years and make it impossible to grief.

Age 26 – There’s something magic about new babies and they smell totally awesome.

Age 27 – The past is a nice place to visit, the future is a nice place to imagine, but you shouldn’t live in either of them. Live in the present.

Age 28 – The extreme highs and lows of mood I’ve had since my teenage years are not normal. Most people have a pretty stable mood.

Mood stabiliser and antidepressant medications saved more than just my mind, they saved my life.

Age 29 – Travel broadens my mind, fills my heart with goodness and strengthens my soul. If you have the opportunity to travel do. I learned this through visiting India, which has a special place in my heart.

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Me with the Taj Mahal in the background (2).

Age 30 – Creativity enriches every aspect of myself. Stories (written, films, etc.) ignite my imagination and develop my empathy. Art and sculptures help me appreciate the beauty that the creators saw in the world around them or in their mind. Music helps me to feel and gives me the opportunity to dance.

To create something, whatever it is, is a learning process. Sometimes creative projects go well, other times not. But I always learn things from them. The process of creating something makes me feel alive and all lit up – even if it’s just a blog post like this one.

To share something I’ve created with the world makes me super-anxious. But when somebody tells me that my creative project has had some sort emotional resonance with them it becomes a privilege.

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Soulmates (Short Story)

The Finished Product: My homemade candles look great (1).

The Finished Product: Just 1 of the 22 completed (unlit).

The Good Teen (Short Story)

Age 31 – When you do something you love for a job, it doesn’t feel like work. It feels like a vocation and a passion.

Write soon,

Antony

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I aim for posts on this blog to be informative, educational and entertaining. If you have found this post useful or enjoyable, please consider making a contribution by Paypal:


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