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type 1 diabetes

Smart Insulin: Potentially Life-Changing for Type 1 Diabetics

By HealthNo Comments

I recently watched this video about smart insulin, which could potentially be life-changing for people with Type 1 Diabetes:

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Even though JDRF is in American charity it seems to have a UK-based charity in the UK, see: JDRF.org.uk. It presents some interesting facts about living with Type 1 diabetes in the UK:

diabetes-type1-facts-smart-insulins

Smart insulin could revolutionise Type 1 diabetes care; taking away the need for daily blood sugar testing and multiple insulin injections a day.

As a Type 1 diabetic, it’s been a long time since I’ve had hope of a cure or at least better treatment. But this has restored some of my hope. So I would encourage you to all donate, if you can afford to do so.

Write soon,

Antony



I aim for posts on this blog to be informative, educational and entertaining. If you have found this post useful or enjoyable, please consider making a contribution by Paypal:


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Charitable Donations 2014

By Gay, Health, Home, Life, Money / Finances, ThinkingNo Comments

Last year I was Thinking About Homelessness and made donations to The Albert Kennedy Trust and Shelter. I aim to donate to these charities again this year. But this year I’ve also made donations to:

JDRF-logo After reading this blog post: Why EVEN I’M excited about the beta cell breakthrough for type 1 diabetes – and why your £10 donation today will go further than ever before. By JDRF’s Head of Research Communication Rachel Connor, as a Type 1 diabetic, I felt compelled to donate towards a cure for diabetes.

I hope to buy or be bought a JDRF onesie from Onesie Warehouse to make a further £5 donation.

tom-daley-dustin-black-video-screenshot After watching Tom Daley’s and Dustin Lance Black’s heart-felt Youtube video, I decided to donate. My donation supports The Human Rights Campaign in the US and The Brain Tumour Charity in the UK. Both worthy causes that deserve support.

Plus by donating I’ve got a chance to win a double date with Tom & Dustin which includes: a photoshoot, going on the London Eye, going for dinner with Tom & Dustin before being shown around some cool places in London by them.

To find out more see: Omaze – Go on the best double date ever with Tom Daley and Dustin Lance Black in London.

sell-off-nhs-header I’ve made a donation to help make the film Sell-Off – The Abolition of Your NHS.

I am seeing the results of The Health and Social Care Act (2012) on the NHS firsthand. We are quickly moving towards the American model of healthcare, driven by profit not medical need and I think it’s wrong. This film will hopefully show the general public the truth, which is being widely under reported in the media.

All these donations have been relatively small. But even small donations help, and if many people made small donations it would soon mount up.

Write soon,

Antony

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How I was diagnosed with Diabetes

By Health, History, Life2 Comments

Three years ago today I ended up in hospital and was diagnosed with Diabetes, Type 1 insulin dependant. Here is my story (taken from an old version of my website):

Tuesday 30th January 2007

At the weekend mum had sent me a text message to see if I would come and take a look at my sisters laptop that wouldn’t load up. I am the technical support for anything computer related, although can’t always fix the problem. I had felt ill for about two weeks feeling tired and drinking more than I normally would. I told my mum that I would nip down on Tuesday as I had a “study” day from Uni where I am studying to become a Children’s Nurse.

Whilst at mums I was needed a drink every 5 minuets feeling desperately thirsty – like I was in a desert and had not drank for a week. Mum noticed the amount I was drinking and urinating as said that I urgently needed to get it checked it out. I said I would if it continued for a few days.

Dean (step dad) and Mum drove me home as buses are irregular by the time I had got the laptop working. I knew that the local Walk-In-Centre closed in an hour and it was only a 5 minuet walk away, so I decided to go and get it checked out. I thought they would just test me and say that there was nothing wrong. I even said to the nurse that there was probably nothing wrong, but that I just wanted to be checked to be on the safe side.

The Nurse tested my BM which was 22 mmol/l, and told me I needed to go to Accident and Emergency (A&E). I was reluctant to do so as A&E is some distance away from me and because of the disruption to my life it would cause. The Nurse informed me that if my BM was 26 mmol/l I would be in a coma. She insisted I call my mum to take me to A&E, which I did. While mum headed back to pick me up I packed an over night bag (as advised by the Nurse) and rang Uni to let them know.

The day before Kate and I had been to the cinemas and afterwards this desperate thirst had driven me to take the hour walk (there and back) to ASDA to get as much fluids to drink as possible including a 6 pint milk jug and several litres of fruit juices. Thinking back, if I hadn’t decided on a whim to go and get myself checked out I would have gone home and drank those fruit juices, which would of put me in to a coma. I believe I’m very lucky, however my mum believes “it was meant to be.”

Once at A & E:

I am seen by a young, kind looking SHO broke the news that I was likely to have Type 1 Diabetes and that If it was I would need life long insulin. I will always remember his face. He brought me some written information about diabetes. My reaction was a desire for him to be wrong, for it not to be true. I do not want to be a diabetic. However being a student nurse, I knew that it was likely that it was.

I was seen by a Registrar and started on Intravenous Insulin on a Sliding Scale. This caused me to go hypo. My BM was 2 mmol/l, 0 mmol/l and I would have been dead. It felt like I was dieing, like my life was being drained out of me and there was nothing I could do. It started with stomach ache and the shakes and progressed to me going clammy and not being able to move. Thankfully the nurse discontinued the Intravenous Insulin and went to get me a cup of tea with a sugar.

I was moved to a ward at about 02:30am and greeted by a male nurse (just nice to see a fellow male nurse). As you can imagine I didn’t sleep one bit with the noises and unfamiliarity of the environment. The nurse had to come in every 2 hours to do my BM and I was constantly up at the toilet what seemed like every 5 minuets.

Glossary
BM (Blood Measure) is a measurement of gluecose (sugar) levels in the blood. Before eating it should be 4-7 mmol/l. Two hours after eating it should be below 9 mmol/l.
Hypo / Hypoglycaemia is low glucose (sugar) in the blood, on a BM anything below 4 mmol/l is classed as Hypoglycaemia.
Insulin is a hormone produced by the pancreas which allows cells in the body to absorb the glucose.
Intravenous a route of giving drugs/fluids straight in to the vein.
SHO (Senior House Officer) is a middle grade doctor.
Sliding Scale is when a drug is started on a dose and depending upon your bodies reaction the drug is increased or decreased. E.g. if your BM had gone from 14 mmol/l to 20 mmol/l the insulin would be increased.
Registrar is high grade doctor.

I remember when I finally got discharged from hospital, I went home and started running a bath. While the bath was running, I sat on the floor with my knees up to my chest and cried. It was the first time I was really able to express how I felt about my diagnosis. I am of course three years on much more tolerant of my diabetes. So why share the story?

I felt alone when I was diagnosed and that there was no psychological support. So I guess I’ve shared the story to let others who are newly diagnosed this message:

You are not alone. Others have experienced how you currently feel. It gets better with time. You adjust and adapt.

Take care,

Antony

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Hope for a cure for Type 1 Diabetes

By Health4 Comments

I have come across hope for a cure for Type 1 Diabetes. Below is a rather lengthly video interviewing Dr. Faustman (from The Faustman Lab at Massachusetts General Hospital).

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Interview: Type 1 Diabetes Cure Trial from David Edelman on Vimeo.

(Video from: http://www.diabetesdaily.com/edelman/2008/09/diabetes-cure.php, last accessed: 13th September 09)

I learned a lot watching this video about diabetes, the history of research and current thinking. It sounds good to me. The problem is that the clinical trials won’t be funded by the big drug companies as the drug proposed to be used for the cure are a generic drug, a one off dose. Rather than for creating a new drug that people will need to manage the condition (continuous treatment).

Big drug companies don’t want to fund for a cure as they’ll make more money out of continuous treatment. How wrong is that? I have emailed The Faustman Lab at Massachusetts General Hospital) with this email:


“Hi,

I have recently come across your website and research on a cure for Type 1
diabetes. Thank you for your hard work on a cure for diabetes! As a type 1
diabetic diagnosed in January 07 (at the age of 21 years old!), I am
pleased to see this research being done.

I imagine that your research is US based, but I would be grateful if you
know of any UK based research trials going on if you could email me back
so I can contact them to see about joining trials.

I look forward to your reply.

Many thanks,

Antony Simpson”

I really want to do something to raise funds for this research. Will have to have a think and come up with some rather imaginative ideas of raising money. Now I never ask for any money off anyone, but if you think this is a good cause and want to give a £1, you can do so on their website: The Faustman Lab at Massachusetts General Hospital.

Let you know how I get on with my fund raising ideas,

Antony x

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