The Vasculitis flare ups had been getting more and more frequent. More painful. So when my blood test results can back abnormal, I can’t say that I was surprised.
In the next month, I’ll be having two infusions of Rituximab, two weeks apart.
Let’s be clear about the aim of this treatment:
It’s to try to slow down the progress of the Vasculitis. Not to treat it or cure it. Just to slow it down.
What is Rituximab?
Rituximab is a drug that essentially kills certain white blood cells that make up the immune system.
Side Effects of Rituximab Treatment Include:
- Fatigue
- Nausea / Vomiting
- Gastro Issues – loose bowels or constipation
- Rashes / Hives
- Hair Loss
- Headaches
- Swelling caused by a build up of fluid
- Allergic Reaction – causing a high temperature and potentially difficulty in breathing
- Weight loss
- High blood sugars
- Anxiety / Agitation
- Dizziness
- Mouth Ulcers
- Sweating
But the big one is an increased risk of getting an infection. Infections that the body would usually be able to fight off, it won’t be able to. This means that any infection could become quickly life threatening and potentially kill me (if not treated promptly or if I am just unlucky).
It’s a scary time. But whatever I think and feel about it, its got to be done.
Hopefully write soon,
Antony
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