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hole in the roof of my mouth

Health Update: 1 Year

By HealthNo Comments
Me with my latest book.

It’s nearly been 1 year.

One year since I developed a hole in the roof of my mouth. So I thought I’d give you a health update.

The hole remains the same size that it’s been for a while now. It is affecting my speaking, eating and overall mental wellbeing. I’ve seen a Surgeon who says he can fix the hole, but wants my HbA1C to be 40mmol/mol prior to surgery. It is currently 54mmol/mol. This has been achieved thanks to my insulin pump.

My diabetes team and GP both feel the surgeon’s goal is unrealistic and unachievable for a Type 1 diabetic like myself. My diabetes consultant and GP have both written to the surgeon.

I have written to the surgeon, asking about flexibility around this target and timescales for surgery. I’ve had a CT and MRI scan and am due to see the surgeon again in June.

I am hoping the summer will bring some good news on the surgery front.

My Best Wishes,

Antony

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Friday 4 April 2025

Morris the Mould

By HealthNo Comments

Let me introduce you to Morris the Mould:

This last week I’ve seen Max Fax about the hole in the roof of my mouth. Their immediate fix is Morris. He reminds me of a retainer brace I once had when I was in my teens.I’m thinking about getting him googly eyes and a wig.

But seriously, although currently uncomfortable he covers the hole allowing me to eat and drink without things coming out of my nose.

But it doesn’t seal the hole by sitting flat against it as I hoped. This means my ability to talk and be understood is still impaired.

They are looking to surgically fix the hole and potentially rebuild my septum in my nose in January. Providing that:

  1. The hole doesn’t get any worse in the meantime – not something I really have control over.
  2. That I remain smoke-free.
  3. That I manage to improve my blood sugar readings to reduce the risk of surgical complications. I’m going on an insulin pump soon, which should help with this.

I’m disappointed that Morris doesn’t sit tight against the roof of my mouth, essentially blocking the hole so that I can speak normally. In every conversation, I am struggling to be understood. For someone that’s always relied on verbal communication this is heartbreaking.

My mood is low and I feel like Vascuilitis is winning.

Take care,

Antony

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Friday 26 July 2024
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