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hole in roof of mouth

Health Update: 1 Year

By HealthNo Comments
Me with my latest book.

It’s nearly been 1 year.

One year since I developed a hole in the roof of my mouth. So I thought I’d give you a health update.

The hole remains the same size that it’s been for a while now. It is affecting my speaking, eating and overall mental wellbeing. I’ve seen a Surgeon who says he can fix the hole, but wants my HbA1C to be 40mmol/mol prior to surgery. It is currently 54mmol/mol. This has been achieved thanks to my insulin pump.

My diabetes team and GP both feel the surgeon’s goal is unrealistic and unachievable for a Type 1 diabetic like myself. My diabetes consultant and GP have both written to the surgeon.

I have written to the surgeon, asking about flexibility around this target and timescales for surgery. I’ve had a CT and MRI scan and am due to see the surgeon again in June.

I am hoping the summer will bring some good news on the surgery front.

My Best Wishes,

Antony

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Friday 4 April 2025

The WORST Week of My Life

By HealthNo Comments

Last week was the worst of my life. The hole in the roof of my mouth got bigger. It took away my ability to speak and be understood clearly, restricted my diet and fluid intake and made taking medications challenging.

It sent my mood very low. Apart from attending a coupe of medical appointments, I slept. Day and night. That’s all I did. The situation felt overwhelming.

Its taken me a week to figure it out. I’ve been stressing and worrying about things that I have no control over. It reminded of this page in The Alcohol Therapy Workbook:

So I am re-focusing on what I can control: me. My thoughts and behaviours.

Write soon,

Antony

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Sunday 14 July 2024

Health Update: Problems With Speaking & Being Understood

By HealthNo Comments

In a month, the hole in the roof of my mouth has doubled in size. The NHS has lost my Max Fax referral and it is now affecting my ability to speak and in being understood.

It has already affected my diet and fluid intake, causing me to loose weight.

So I had no choice but to go to my local A&E Department and request another Max Fax referral. It was so fustrating the staff not understanding me when I tried to explain myself. The only way I can be understood clearly is with yes and no answers.

Vasculitis continues to get me down and I’m still waiting to start on the treatment fot it.

Blog soon,

Antony

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Sunday 7 July 2024
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